主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

中国护理管理 ›› 2025, Vol. 25 ›› Issue (12): 1908-1913.doi: 10.3969/j.issn.1672-1756.2025.12.029

• 综述 • 上一篇    下一篇

数字健康技术在多发性硬化症患者自我管理中的研究进展

赵洁 常红   

  1. 首都医科大学宣武医院神经内科,国家老年疾病临床医学研究中心,100053 北京市
  • 出版日期:2025-12-15 发布日期:2025-12-15
  • 通讯作者: 常红,硕士,主任护师,科护士长,护理部副主任,E-mail:changhong19791111@126.com
  • 作者简介:赵洁,硕士,主管护师
  • 基金资助:
    北京市卫生健康委员会研究型病房卓越临床研究计划项目(BRWEP2024W022010106);科技部国家医学研究中心后补助经费(303-01-001-0272-10)

Research progress on digital health technologies in self-management for patients with Multiple Sclerosis

ZHAO Jie, CHANG Hong   

  1. Department of Neurology, Xuanwu Hospital, Capital Medical University, National Clinical Research Center for Geriatric Diseases, Beijing, 100053, China
  • Online:2025-12-15 Published:2025-12-15
  • Contact: E-mail:changhong19791111@126.com

摘要: 多发性硬化症(Multiple Sclerosis,MS)因病灶空间多发性、病程时间差异性及复杂神经症状,给患者自我管理带来挑战。文章综述了数字健康技术的概述及其在MS患者长期自我管理支持中的应用,如自我监测、心理健康与社交支持、风险预测、健康教育支持等多方面功能的研发与应用,以及使用者对数字健康技术的接受程度与看法,并对数字健康技术在MS患者自我管理领域发展的挑战进行讨论,旨在为优化MS患者的自我管理提供借鉴。

关键词: 多发性硬化症;数字健康技术;自我管理;综述

Abstract: Multiple sclerosis (MS) is a highly heterogeneous disease characterized by spatially and temporally diverse lesions, along with a variety of neurological symptoms, which pose challenges for self-management in MS patients. This article reviews the overview of digital health technologies and their application in long-term self-management support for patients with MS, including the development and application of multifaceted functions for self-monitoring, mental health and social support, risk prediction and health education support. Additionally, it explores users' acceptance and perceptions of these technologies. It also discusses the challenges in the development of digital health technologies in the field of MS patients self-management, aiming to provide insights for optimizing self-management in MS patients.

Key words: Multiple Sclerosis; digital health technology; self-management; review

中图分类号:  R47;R197