主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

中国护理管理 ›› 2026, Vol. 26 ›› Issue (3): 363-367.doi: 10.3969/j.issn.1672-1756.2026.03.009

• 论著 • 上一篇    下一篇

患者向未成年子女披露肠造口信息的体验研究

王丹丹 张洁 张丽燕 国仁秀 岳鹏   

  1. 首都医科大学护理学院,100069 北京市(王丹丹,岳鹏);北京大学肿瘤医院暨北京市肿瘤防治研究所胃肠肿瘤中心三病区,恶性肿瘤发病机制及转化研究教育部重点实验室(王丹丹,张洁);消化肿瘤内科(张丽燕);护理部(国仁秀)
  • 出版日期:2026-03-15 发布日期:2026-03-15
  • 通讯作者: 岳鹏,博士,教授,基础护理学系主任,E-mail:pkuyuepeng@ccmu.edu.cn
  • 作者简介:王丹丹,硕士在读,主管护师
  • 基金资助:
    国家公立医院改革与高质量发展示范项目(11010822T000001740154)

Experience of patients disclosing enterostomy information to their minor children

WANG Dandan, ZHANG Jie, ZHANG Liyan, GUO Renxiu, YUE Peng   

  1. School of Nursing, Capital Medical University, Key laboratory of Carcinogenesis and Translational Research (Ministry of Education), Gastrointestinal Cancer Center Unit Ⅲ, Peking University Cancer Hospital & Institute, Beijing, 100069, China
  • Online:2026-03-15 Published:2026-03-15
  • Contact: E-mail:pkuyuepeng@ccmu.edu.cn

摘要: 目的:揭示结直肠癌肠造口患者向未成年子女披露肠造口信息的核心体验,为构建科学的疾病沟通方案提供依据。方法:采取目的抽样法,于2024年11月至2025年4月,选取北京市某三级甲等肿瘤专科医院胃肠肿瘤中心、需要抚养未成年子女的9名结直肠癌肠造口患者进行半结构访谈,使用Colaizzi 7步分析法对访谈资料进行整理分析。结果:共提炼出4个主题:保护性沉默的困境;限制性信息披露的积极效应;未成年子女面对突发性信息披露的应激反应;信息披露后护幼策略对未成年子女的保护。结论:结直肠癌肠造口患者向未成年子女披露肠造口信息的策略各异,其对未成年子女的影响亦不相同,医护人员应关注此类患者,协助其制定适宜的肠造口信息披露策略。

关键词: 结直肠癌;肠造口;未成年子女;肠造口信息披露;质性研究

Abstract: Objective: To reveal the experience of colorectal cancer enterostomy patients disclosing enterostomy information to their minor children, and to provide a basis for constructing scientific disease communication plans. Methods: From November 2024 to April 2025, purposive sampling was used to select nine colorectal cancer enterostomy patients who needed to raise minor children in the Gastrointestinal Oncology Center of a tertiary grade A cancer hospital in Beijing for semi-structured interview. Interview data were sorted and analyzed by using the Colaizzi 7-step analysis method. Results: A total of four themes were extracted: the dilemma of protective silence; the positive effect of restrictive information disclosure; the stress response of minor children to sudden information disclosure; the effect of protective strategies on minor children after information disclosure. Conclusion: The strategies for disclosing enterostomy information to minor children in colorectal cancer patients are different, and their effects on minor children are also different. Medical staff should pay attention to such patients and assist them in developing appropriate strategies for disclosing information about enterostomy.

Key words: colorectal cancer; enterostomy; minor children; enterostomy information disclosure; qualitative research

中图分类号:  R47;R197