主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

中国护理管理 ›› 2023, Vol. 23 ›› Issue (3): 410-416.doi: 10.3969/j.issn.1672-1756.2023.03.017

• 循证护理 • 上一篇    下一篇

孤独症谱系障碍儿童照护者真实体验与需求的Meta整合

唐灵玲 罗锋 刘开群 张小利 李润   

  1. 西南医科大学护理学院,646000 四川省泸州市(唐灵玲) ;西南医科大学附属中医医院新生儿科(罗锋,刘开群,张小利,李润)
  • 出版日期:2023-03-15 发布日期:2023-03-15
  • 通讯作者: 李润,硕士,副主任护师,硕士生导师,E-mail:843485744@qq.com
  • 作者简介:唐灵玲,硕士在读,主管护师
  • 基金资助:
    四川省科技计划项目(2021JDRC0161)

Real experience and needs of caregivers of children with Autism Spectrum Disorder: a Meta-synthesis

TANG Lingling, LUO Feng, LIU Kaiqun, ZHANG Xiaoli, LI Run   

  1. Nursing College of Southwest Medical University, Luzhou, Sichuan province, 646000, China
  • Online:2023-03-15 Published:2023-03-15
  • Contact: E-mail:843485744@qq.com

摘要: 目的:系统评价孤独症谱系障碍(ASD)儿童照护者真实体验与需求。方法:计算机检索Web of Science、PubMed、CINAHL、PsycINFO、Embase、中国生物医学文献数据库、中国知网、万方、维普期刊数据库中关于ASD儿童照护者体验的质性研究。采用Meta整合的方法对结果进行整合。结果:最终纳入12篇文献,提炼出32个主要结果,归纳成12个类别,整合成4个结果,分别为沉重的负担、家庭的改变、自我成长、知识和支持的缺乏。结论:ASD伴随患者终身,照护者在长期的照护过程中面临巨大压力。社会相关人士应给予ASD儿童家庭更多的关爱,重视ASD儿童照护者真实的体验和需求,提供心理疏导和必要支持,使其尽快接纳和适应角色,促进ASD儿童成长。

关键词: 孤独症谱系障碍;照护者;体验;需求;Meta整合

Abstract: Objective: To systematically evaluate the real experience and needs of caregivers of children with Autism Spectrum Disorder (ASD). Methods: Web of Science, PubMed, CINAHL, PsycINFO, Embase, CBM, CNKI, Wanfang, and VIP journal databases were searched for qualitative studies on the experience of caregivers of children with ASD. The results were integrated by the Meta-synthesis method. Results: In the end, 12 studies were included, and 32 research results were extracted, which were summarized into 12 categories and integrated into 4 results: heavy burden, changes in the roles of family members, self-growth, lack of knowledge and support. Conclusion: ASD is lifelong, and caregivers face great pressure in the long-term care process. Relevant people in society should give more care to families of children with ASD, pay attention to the real experience and needs of the caregivers, provide psychological counseling and necessary support, make them accept and adapt to their roles as soon as possible, and promote the growth of children with ASD.

Key words: Autism Spectrum Disorder; caregivers; experience; demand; Meta-synthesis

中图分类号:  R47;R197