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主办:国家卫生健康委医院管理研究所
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中国护理管理 ›› 2026, Vol. 26 ›› Issue (9): 1420-1425.doi: 10.3969/j.issn.1672-1756.2026.09.026

• 专科管理 • 上一篇    下一篇

儿童重症监护室肿瘤患儿家庭照护者的心理体验

何旭东 王春立 吴思婷 段颖杰 任寒 王莉 武莹 迟巍   

  1. 国家儿童医学中心,首都医科大学附属北京儿童医院护理部,100045 北京市
  • 出版日期:2026-09-15 发布日期:2026-09-15
  • 通讯作者: 王春立,硕士,主任护师,护理部副主任,E-mail:chunliwang2008@163.com
  • 作者简介:何旭东,硕士,护师
  • 基金资助:
    2025年度雏菊学苑儿童安宁缓和医疗科研项目(DA-ZD-202503)

Qualitative study on the psychological experience of family caregivers of children with severe cancer in the Pediatric Intensive Care Unit

HE Xudong, WANG Chunli, WU Siting, DUAN Yingjie, REN Han, WANG Li, WU Ying, CHI Wei   

  1. Department of Nursing, The National Center for Children's Health and Beijing Children's Hospital, Capital Medical University, Beijing, 100045, China
  • Online:2026-09-15 Published:2026-09-15
  • Contact: E-mail:chunliwang2008@163.com

摘要: 目的:探究儿童重症监护病房肿瘤患儿家庭照护者的心理体验过程,以期指导临床心理护理实践。方法:采用描述性质性研究方法,于2025年4月—10月,通过目的抽样法招募在北京市某三级甲等儿童医院PICU住院的肿瘤患儿的主要家庭照护者为研究对象,进行一对一半结构化访谈,并采用主题分析法对资料进行分析。结果:共纳入16名照护者,提炼出4个主题和18个亚主题:初期情感冲击(情绪崩溃、共情性痛苦、失控性恐惧、绝望)、持续性焦虑(过度警觉、决策纠结、自责、对未来的失控感)、照护角色困境(能量耗竭状态、照护剥夺感、担忧被患儿误解、家庭角色冲突、社会关系退缩)、心理韧性调适(情绪宣泄、自我慰藉、责任驱动下的坚韧、积极自我暗示、平和接纳现实)。结论:儿童重症监护病房肿瘤患儿家庭照护者的心理体验复杂而多元,需要重视其多重心理痛苦,降低创伤应激风险,缓解阶段性压力与困境,并注重挖掘其逆境中的成长潜力,以促进其积极心理成长。

关键词: 重症;肿瘤;照护者;心理体验;儿童重症监护室;质性研究

Abstract: Objective: To explore the psychological experience process of family caregivers of children with cancer in the Pediatric Intensive Care Unit (PICU), with the aim of guiding clinical psychological nursing practice. Methods: A descriptive qualitative study was conducted from April to October 2025. Primary family caregivers of pediatric oncology patients in the PICU of a tertiary children's hospital in Beijing were recruited by purposive sampling. One-on-one semi-structured interviews were performed, and the data were analyzed using thematic analysis. Results: A total of 16 caregivers were enrolled, and 4 themes with 18 subthemes were identified: initial emotional shock (emotional breakdown, empathetic distress, fear of losing control, and despair); persistent anxiety (hypervigilance, decisional conflict, self-blame, and loss of control over the future); caregiving role dilemma (energy exhaustion, sense of caregiving deprivation, concern about being misunderstood by the child, family role conflict, and social withdrawal); and psychological resilience adaptation (emotional venting, self-comfort, resilience driven by responsibility, positive self-suggestion, and peaceful acceptance of reality). Conclusion: The psychological experience of family caregivers of children with cancer in the PICU is complex and multifaceted. Their multiple psychological distresses should be addressed to reduce the risk of traumatic stress, alleviate stage-specific pressures and dilemmas, and tap into their growth potential within adversity, so as to promote positive psychological growth.

Key words: critical illness; cancer; caregivers; psychological experience; Pediatric Intensive Care Unit; qualitative research

中图分类号:  R47;R197