关键词: 患者旅程地图；结直肠癌；肠造口；中青年；健康管理需求；生活质量

Abstract: Objective: Based on the patient journey mapping, the multidimensional needs in the health management of young and middle-aged enterostomy patients with colorectal cancer are visualized, providing information support for optimizing the whole-journey care for those patients. Methods: Using descriptive research methods, 13 young and middle-aged enterostomy patients with colorectal cancer were selected from December 2023 to March 2024. Content analysis was employed to analyze the interview data and draw the journey map of the patients. Results: According to the timing of diagnosis and treatment, from the three dimensions of task, emotion and pain points, the health management needs of patients were subdivided into 30 themes, including early screening and early diagnosis, symptom management, excretion concealment, care support, social adjustment and information screening, to establish the journey map of young and middle-aged enterostomy patients with colorectal cancer. Conclusion: The diversity and complexity of the patients's health management needs make their cancer journey long and complicated. In the future, in light with the various health management needs of such patients, it is necessary to study and construct a health management resource matching model with complementary authoritative medical care and high-quality peer support, so as to synergistically support patients' physical and psychosocial needs, accurately provide quality whole-journey care support to colorectal cancer patients with colostomy.

Key words: patient journey mapping; colorectal cancer; enterostomy; young and middle-aged people; health management need; quality of life