关键词: 认知行为疗法；难治性癫痫；儿童；围手术期；主要照顾者；心理韧性

Abstract: Objective: To construct and implement the perioperative resilience management program for the primary caregiver of children with refractory epilepsy, and evaluate its effectiveness, to make up a standard and scientific practice. Methods: The literature analysis, group discussion and expert consultation methods were used to construct the perioperative resilience management program for the primary caregiver of children with refractory epilepsy based on cognitive behavior therapy. The primary caregivers of children with refractory epilepsy from Oct 2022 to Sep 2023 were enrolled in this study using convenient sampling method, who were divided into the control group and the observation group based on the date of surgery for the patient, with 80 cases in each group. In order to avoid inter-group interference, the two groups were alternated into the study every 2 months. In the control group, routine resilience nursing was conducted. The observation group was treated with perioperative resilience management program. The intervention duration for both groups is from admission of the patient to one month after discharge. The differences in negative emotions, resilience, care burden and life satisfaction between the two groups were compared. Results: On the day of subsequent visit, the scores of the Self-Rating Anxiety Scale, Self-Rating Depression Scale, and Zarit Burden Interview were lower than those of the control group. The scores of various dimensions of the Connor-Davidson Resilience Scale and Life Satisfaction Index A were higher than those of the control group, and the differences were statistically significant (P<0.05). Conclusion: Perioperative resilience management program for the primary caregiver of children with refractory epilepsy based on cognitive behavior therapy can improve resilience of primary caregivers.

Key words: cognitive behavioral therapy; refractory epilepsy; children; perioperative period; primary caregiver; resilience