主管:国家卫生健康委员会
主办:国家卫生计生委医院管理研究所
中国科学引文数据库(CSCD)来源期刊
中国科技论文统计源期刊 中国科技核心期刊
《中文核心期刊要目总览》入选期刊

Chinese Nursing Management ›› 2023, Vol. 23 ›› Issue (3): 410-416.doi: 10.3969/j.issn.1672-1756.2023.03.017

• Evidence-based Nursing • Previous Articles     Next Articles

Real experience and needs of caregivers of children with Autism Spectrum Disorder: a Meta-synthesis

TANG Lingling, LUO Feng, LIU Kaiqun, ZHANG Xiaoli, LI Run   

  1. Nursing College of Southwest Medical University, Luzhou, Sichuan province, 646000, China
  • Online:2023-03-15 Published:2023-03-15
  • Contact: E-mail:843485744@qq.com

Abstract: Objective: To systematically evaluate the real experience and needs of caregivers of children with Autism Spectrum Disorder (ASD). Methods: Web of Science, PubMed, CINAHL, PsycINFO, Embase, CBM, CNKI, Wanfang, and VIP journal databases were searched for qualitative studies on the experience of caregivers of children with ASD. The results were integrated by the Meta-synthesis method. Results: In the end, 12 studies were included, and 32 research results were extracted, which were summarized into 12 categories and integrated into 4 results: heavy burden, changes in the roles of family members, self-growth, lack of knowledge and support. Conclusion: ASD is lifelong, and caregivers face great pressure in the long-term care process. Relevant people in society should give more care to families of children with ASD, pay attention to the real experience and needs of the caregivers, provide psychological counseling and necessary support, make them accept and adapt to their roles as soon as possible, and promote the growth of children with ASD.

Key words: Autism Spectrum Disorder; caregivers; experience; demand; Meta-synthesis

CLC Number: R47;R197