关键词: 脑卒中；残疾；社会参与；影响因素

Abstract: Objective: To explore the social participation level and its associated factors of disabled patients with stroke in 3 different disease stages disease of 6, 12, and 18 months. Methods: From June 2018 to March 2019, a total of 210 disabled patients with stroke within 3 months, 12 months and 18 months respectively in the Fifth Affiliated Hospital of Harbin Medical University were selected with 70 patients in each disease stages. A set of questionnaires including Self-made General Situation Questionnaire (SGSQ), modified Rankin Scale (mRS), Impact on Participation and Autonomy questionnaire (IPA), Self-rating Depression Scale (SDS), General Self-Efficacy Scale (GSES), National Institute of Health Stroke Scale (NIHSS), and Family Care Index Assessment Form (APGAR Questionnaire) was used. Results: It was showed that patients with a course of disease at 6, 12, and 18 months after stroke were mostly moderately or severely disabled. Those with moderate disabilities accounted for 24.30%, 44.30%, and 30.00%, for 6 months, 12 months, and 18 months respectively. Those with severe disabilities accounted for 48.60% and 40.00%, 52.90% for 6 months, 12 months, and 18 months respectively. IPA scores were (44.41±14.99), (42.43±13.08), (48.60±14.03) for these 3 different disease durations. The IPA scores among 3 coures were significantly different (P<0.05). The IPA scores of 12 and 18 months were significantly different (P<0.05). Multiple regression showed associated factors with the social participation level of disabled patients with stroke at 6, 12, and 18 months were disabled level and depression; marriage, depression, and NIHSS score, and disabled level and depression, respectively (all P<0.05). Conclusion: The social participation level of disabled patients with different disease duration after stroke needs to be improved. Associated factors with social participation level are different among patients with different disease duration. Targeted interventions are needed to improve the social participation level of patients with stroke.

Key words: stroke; disability; social participation; influencing factors