主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

中国护理管理 ›› 2024, Vol. 24 ›› Issue (2): 175-180.doi: 10.3969/j.issn.1672-1756.2024.02.004

• 特别策划·安宁疗护与生死教育 • 上一篇    下一篇

利益相关者视角下生前预嘱签署的困境与挑战

龚霓 成美静 张子晴 符隆文   

  1. 暨南大学护理学院健康与社会照护研究中心,510632 广州市(龚霓,成美静,张子晴);中山大学附属第七医院临床医学人文研究中心(符隆文)
  • 出版日期:2024-02-15 发布日期:2024-02-15
  • 通讯作者: 符隆文,博士,副研究员,E-mail:fulw5@mail.sysu.edu.cn
  • 作者简介:龚霓,博士,副教授,主任,硕士生导师
  • 基金资助:
    国家社会科学基金项目(21CSH026)

Dilemmas and challenges of signing living will from stakeholders' perspective

GONG Ni, CHENG Meijing, ZHANG Ziqing, FU Longwen   

  1. School of Nursing, Jinan University, Guangzhou, 510632, China
  • Online:2024-02-15 Published:2024-02-15
  • Contact: E-mail:fulw5@mail.sysu.edu.cn

摘要: 目的:分析在生前预嘱签署过程中各利益相关群体面临的困境与挑战,为优化生前预嘱的签署策略提供参考。方法:采用现象学研究方法,于2023年7月—11月对来自深圳市的生前预嘱(潜在)签署主体、家属、医护人员、社工、志愿者共33人进行半结构化访谈,采用Colaizzi?7步分析法进行资料分析。结果:共提炼出3个主题和6个子主题,分别为空间错位(医院之外、医院之内),时间错位(为时尚早、为时已晚),主体错位(家属“越位”、患方“让位”)。结论:生前预嘱签署在实践过程中,签署地点、签署时间、决策主体3个维度存在错位,导致生前预嘱在推广实施中遭受冷遇。提示未来需要搭建各利益相关群体的沟通平台,加强生命教育,在公众中建立生前预嘱的理念,从而推动生前预嘱签署的相关共识的达成。

关键词: 生前预嘱;利益相关群体;签署过程;错位;现象学研究

Abstract: Objective: To analyze the dilemmas and challenges faced by various stakeholder groups in the process of signing living wills, and to provide reference for optimizing the signing strategy of living wills. Methods: This study adopted a phenomenological research method to conduct semi-structured interviews with a total of 33 people from Shenzhen city from July to November 2023, including (potential) signers of living wills, family members, healthcare professionals, social workers, and volunteers, and analyzed the data by using the Colaizzi 7-step analysis method. Results: Three themes and six sub-themes were identified: spatial mismatch (outside the hospital, inside the hospital), temporal mismatch (it is too early, it is too late), and subject mismatch (family members "overstepping the bounds", patients "giving way"). Conclusion: The mismatch of the three dimensions of place, time, and subject of decision-making in the practice of signing living wills has led to the cold reception of living wills in the promotion and implementation of living wills. It is suggested that in the future, it is necessary to build a communication platform for all stakeholder groups, strengthen life education, and establish the concept of living wills among the public, so as to promote the consensus related to the signing of living wills.

Key words: living will; stakeholders; signing process; mismatch; phenomenological study

中图分类号:  R47;R197