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Inflammatory Bowel Disease patients' experiences of information seeking: a qualitative research

  

  • Online:2016-05-25 Published:2016-05-25

Abstract: Objective: To understand Inflammatory Bowel Disease (IBD) patients' information needs and their experiences of information-seeking in order to gather evidence to design information support program in future. Methods:We recruited and interviewed twenty IBD patients. The data were analyzed under the phenomenological approach. Results:Three categories were emerged from the data: demanding a large amount of information with a wide range of various topics;being difficult to get adequate effective and helpful information; emotion changing during information-seeking process(subcategories: information-seeking combined with anxiety and fear, avoiding negative information, being dying for positive information). Conclusion: A good quality educational resource should be provided for IBD patients for their demands for accurate and relevant information. This effort could be helpful for reducing IBD patients' negative emotion and stress.