主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

• 论著 • 上一篇    下一篇

炎症性肠病患者信息寻求体验的质性研究

顾洁 陆绚 钮美娥 朱兰香   

  1. 苏州大学附属第一医院消化内科,苏州大学护理学院
  • 出版日期:2016-05-25 发布日期:2016-05-25

Inflammatory Bowel Disease patients' experiences of information seeking: a qualitative research

  • Online:2016-05-25 Published:2016-05-25

摘要: 目的:调查炎症性肠病(IBD) 患者在信息寻求经历中遇到的问题与感受,为我国IBD 患者建立有效的信息支持途径提供依据。方法:采用质性研究中的现象学研究方法,深度访谈并分析20 名炎症性肠病患者的信息寻求体验。结果:得出3 个主题:信息需求面广量大;难以获得可靠、充足、有实际指导意义的信息;信息寻求过程中的情感体验。信息寻求过程中的情感体验主题中又得出3 个次主题:信息寻求伴随焦虑与恐惧;对负面信息的逃避;对积极正能量信息的渴求。结论:我国的IBD 患者需要建立专业、有效的精准化信息支持途径,以提供既精确、切题,又避免给患者带来负面情绪与压力的信息,最终达到改善疾病行为、提高生活质量的目的。

Abstract: Objective: To understand Inflammatory Bowel Disease (IBD) patients' information needs and their experiences of information-seeking in order to gather evidence to design information support program in future. Methods:We recruited and interviewed twenty IBD patients. The data were analyzed under the phenomenological approach. Results:Three categories were emerged from the data: demanding a large amount of information with a wide range of various topics;being difficult to get adequate effective and helpful information; emotion changing during information-seeking process(subcategories: information-seeking combined with anxiety and fear, avoiding negative information, being dying for positive information). Conclusion: A good quality educational resource should be provided for IBD patients for their demands for accurate and relevant information. This effort could be helpful for reducing IBD patients' negative emotion and stress.