主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
中国科技核心期刊(中国科技论文统计源期刊)
中国科学引文数据库(CSCD)核心库期刊
《中文核心期刊要目总览》核心期刊

• 延续护理 • 上一篇    下一篇

基于优逝理念的社区晚期癌症患者家属面对亲人离世体验的研究

王凌云 韩琤琤 路琦 金琳 刘晓惠 陈小冬 郗然 赵玉娇   

  1. 西城区德胜社区卫生服务中心护理部
  • 出版日期:2016-12-25 发布日期:2016-12-25
  • 基金资助:
    2014 年度国家社会科学基金项目(14BGL215)

A qualitative study of the death cognition among family members of advanced caner patients in community based on good death concept

  • Online:2016-12-25 Published:2016-12-25

摘要: 目的:了解社区晚期癌症患者家属面对亲人离世的心理状态。方法:采用立意取样选取26 例接受着或接受过社区临终关怀的晚期癌症患者家属(18 例患者已离世),进行3 次小组式访谈,了解家属在面对亲人患重病即将离世前的思考、行为及感受,用质性研究的现象学分析法收集整理资料、分析提炼主题。结果:主题一,家属对亲人的离世有客观认识,但多数不能坦然面对,只有少数能保持情绪稳定;主题二,家属回避与患者谈论死亡相关话题,患者对死亡存在不同程度的恐惧与逃避,有宗教信仰者除外。结论:家属现有的死亡观念不符合“优逝”理念,但可通过“优逝”教育逐步改变;而通过满足心理需求,给予心理支持为切入点,在日常关怀工作中慢慢递进的“优逝”教育方法针对性强,效果较好,有一定的社区医疗实践指导意义。

Abstract: Objective: To explore the attitude to advanced cancer and death among family members of advanced cancer patients, and to explore the significance of good death education in community palliative care. Method: We recruited 26 advanced cancer patients' (18 of the 26 patients died) family members who accepted community palliative care using purposive sampling method. We conducted 3 group interviews to collect the data about the reflection, behavior,and feelings of the family members and analyzed the data by the phenomenological approach. Results: We got two themes.One was that the family members had objective understanding of their relatives' death, but most of them could not face the reality calmly. Another was that most family members avoided to talk about the death with the patients themselves and most patients had fear and evasion to death, except few believer of religion. Conclusion: The community advanced cancer patients and their family members' attitudes of death are not in accordance with good death concept. We could improve their attitude step by step through good death education. The death education in community should start from the family members by satisfying their psychology needs and providing their psychological support.