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脑瘫患儿父母疲劳状况及影响因素研究

周彩峰 李雅楠 王瑞霞 李巧秀 武恒双   

  1. 郑州大学第三附属医院质控办,450052 郑州市(周彩峰,李雅楠);脑康科(王瑞霞,李巧秀);妇科(武恒双)
  • 出版日期:2017-12-25 发布日期:2017-12-25
  • 基金资助:
    河南省医学科技攻关计划项目(201503H001)

Study of fatigue in parents of children with cerebral palsy and impact factors

  • Online:2017-12-25 Published:2017-12-25

摘要: 目的:调查脑瘫患儿父母照顾脑瘫患儿时感受的疲劳状况并分析其影响因素。方法:采用一般资料调查表、疲劳量表、简易应对方式量表,在郑州市某三级甲等医院脑瘫康复科便利抽取130例脑瘫患儿父母进行调查。结果:调查的130例脑瘫患儿父母疲劳得分为(9.32±2.29)分,其中躯体疲劳维度得分为(5.73±1.54)分,脑力疲劳维度得分为(3.59±1.36)分;多元线性回归显示父母性别、父母受教育程度、婚姻状况、患儿治疗时间、积极应对方式、消极应对方式是脑瘫患儿父母疲劳的影响因素。结论:脑瘫患儿父母疲劳程度处于中重度水平,值得关注。临床工作者应鼓励脑瘫患儿父母采取更多的积极应对方式以降低患儿父母的疲劳程度。

Abstract: Objective: To describe self-reported fatigue in patients of children with cerebral palsy and identify the impact factors. Methods: A total of 130 parents with cerebral palsy children were enrolled from a hospital in Zhengzhou. The participants were investigated with general information questionnaire, fatigue scale, simplified coping style questionnaire. Results: The mean score of parents’ fatigue was (9.32±2.29); the dimension of physical fatigue was (5.73±1.54) and mental fatigue was (3.59±1.36). Multiple linear regression analysis showed that parents’ gender, education background, marital status, children’s time-to-treatment, coping style were impact factors of fatigue in parents of children with cerebral palsy. Conclusion: In parents of children with cerebral palsy, fatigue is common. Interventions targeting parents’ fatigue should be explored.