主管:国家卫生健康委员会
主办:国家卫生健康委医院管理研究所
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住院肿瘤患者照护需求及其对照护者的角色期望调查

王国蓉 杨慧 唐小丽 张健 江宾 秦英 黄敏   

  1. 四川省肿瘤医院护理部(王国蓉,张健,江宾);胃肠中心(杨慧,唐小丽);供应室(秦英);门诊(黄敏)
  • 出版日期:2017-01-25 发布日期:2017-01-25
  • 基金资助:
    四川省卫生厅2011 年科研课题(110270)

Investigation of the care needs among hospitalized cancer patients and their expectations to caregivers' role

  • Online:2017-01-25 Published:2017-01-25

摘要: 目的:调查肿瘤住院患者的照护现状和期望,分析肿瘤患者在生理、心理及精神方面对照护的需求和存在的不足,为改进肿瘤住院患者照护品质提供实证依据。方法:采用问卷调查研究方法,应用自行编制的“肿瘤住院患者照护现状及期望问卷”对某三级甲等肿瘤专科医院的462 名住院患者进行调查。结果:① 462 名肿瘤住院患者中,Barthel 指数评分为(63.78±7.65) 分,仅有3.2% 无陪护,81.7% 为亲人陪护,18.3% 为职业陪护。②在日常生活性照护中的照护需求主要为提供饮食、购物、洗衣服和整理房间;患者对治疗相关性照护和情感表达性照护需求均较高。③照护实施者与期望者角色差异有统计学意义的项目为整理房间、陪伴检查、协助服药、翻身拍背、倾听倾述、陪伴聊天、疏导情绪、提供娱乐、缓解陌生感等(P <0.05)。结论:住院肿瘤患者具有较好的生活自理能力和愿望,照护者满足了较多的日常生活和治疗相关性照护需求,但对情感表达性照护需求的满足严重不足。通过完善医院人性化服务与配置,改善后勤保障支持等措施可较好满足患者日常生活和治疗相关照护的需求,减少对家庭照护者的依赖,但要改善情感表达照护需求的现状则是一个值得不断实践和研究的问题。

Abstract: Objective: To investigate the care status and expectations of hospitalized cancer patients, and to explore the needs and deficiencies those cancer patients perceived about nursing care in physiological, psychological and spiritual aspects in China. Method: The study was performed in the Sichuan Cancer Hospital and involved 462 hospitalized cancer patients undergoing chemotherapy or radiotherapy. Questionnaires were used as the major research method, which was based on modified Barthel index and Watson human caring theory, including physical, social, and psychological care.Results: ① In 462 participants, Barthel Index Score was 63.78±7.65, and 3.2% of the patients were not accompanied; 81.7% accompanied by family members, and 18.3% by employed caregivers. ② Care needs in daily life included providing foods,shopping, cleaning and tidying up, and more care needs were those related to treatment and emotional expression. ③ The status quo of care was those including making bed, keeping ward environment, accompanying for tests, reminding pills taken, facilitating emotional expression (including listening, talking, easing the mood and entertainments) which were not as well as expected (P<0.05). Conclusion: The cancer patients in the hospital had better self-care ability and intention,and the present care met a large proportions of the needs of the patients in daily life and the treatment related needs, but there were far from enough of the care in emotions provided for the patients. It may be easy to decrease the dependence on the family members through the humanistic care in the hospital environment, equipment and patient supporting services improvement, but the care in emotional expression has been a subject needs further study.