关键词: 先天性心脏病；照顾者负担；Zarit照顾者负担量表

Abstract: Objective: To investigate the current status of the main caregivers of children with Congenital Heart Disease (CHD) undergoing surgery and analyze the influencing factors. Methods: A total of 168 main of CHD children who underwent surgery in a hospital were selected by convenient sampling method. The general information of the children and their main caregivers was collected. The main caregiver's burden was assessed according to the Zarit Caregiver Burden Interview (ZCBI). Multiple linear regression analysis was used to analyze the influence factors of the burden of main caregivers. Results: The main caregivers of 168 children with CHD had a ZCBI score of 23-67 (43.15±9.32), which was a moderate burden, including 76 cases (45.23%) with mild burden, 82 cases (48.81%) with moderate burden. and 10 cases (5.96%) with severe burden. Multiple linear regression analysis showed that the age of the child, postoperative recovery, the main caregiver marital status, education level, daily care time, depression, and family monthly income could affect the burden of caregiver. Conclusion: The burdens of main caregivers of children with CHD undergoing surgery is affected by multiple factors. Nursing staff can help reduce their burden by giving caregivers physiological, psychological guidance and social support.

Key words: Congenital Heart Disease; caregiver burden; Zarit Caregiver Burden Interview