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风湿性疾病患儿父母创伤后成长的质性研究

陆朋玮 孙静 连冬梅 张艳 李杨   

  1. 北京协和医学院护理学院,100144 北京市(陆朋玮,张艳,李杨);北京协和医院儿科(孙静,连冬梅)
  • 出版日期:2017-08-25 发布日期:2017-08-25

The Post Traumatic Growth of parents of children with rheumatic disease: a qualitative research

  • Online:2017-08-25 Published:2017-08-25

摘要: 目的:了解风湿性疾病患儿父母创伤后成长体验。方法:以质性研究中的现象学研究方法为指导,采用目的抽样法选取10例风湿性疾病患儿父母为研究对象,进行半结构化访谈。结果:风湿性疾病患儿父母创伤后成长体验主要包括:人生感悟(对生命的珍惜、生命中重要事物优先性变化、调整自我接受现实);个人力量的增强(自我依赖感增强、自我成就感增强);人际关系的改善(家庭和谐度增强、珍视亲子情缘、获益于其他患儿父母和医务人员的专业支持、同理心及利他意识提升)。结论:风湿性疾病患儿父母的创伤后成长体验是以其所承担的角色(父/母)及责任为前提的,可以作为未来创伤干预的重要依据,同时也可作为发掘患儿父母创伤后成长潜能的切入点,最终提高风湿性疾病患儿父母的创伤后成长水平。

Abstract: Objective: To explore and describe the experience of Post Traumatic Growth of parents of children with rheumatic diseases. Methods: Phenomenological research methods and semi-structured individual interviews were used to get a clear understanding of the experience of the parents' post traumatic growth. And 10 parents whose children were diagnosed as rheumatic diseases were recruited to have semi-structured interviews. Results: Through inductive thematic analysis, three themes were derived, including nine sub-themes. The key themes were the insights on life (treasure for life, new values as to life priorities, self adjustment to accept the reality), increased personal strength (self dependence, self enhancement), improved interpersonal relationship (greater sense of closeness and family togetherness, cherish the parent-child love, benefit from peer and other professional support, empathy and promotion of altruism). Conclusion: The experience of post traumatic growth of parents can be used as a breakthrough point to explore the growth potential of children's parents after trauma, and ultimately improve the PTG level of children's parents.